I was diagnosed with Lupus in November last year. I started taking the anti-malaria drug, Plaquenil, soon after. It takes six months to see it’s full effects. I am halfway through this period.
I feel A LOT better. I’ve had sores on my face for five years now. My skin is clear now, most days. When the sores do come up, they recede within 24-36 hours, if I stop all activity. And I mean, I have to stop and lie flat on my back.
Most people don’t know much about Lupus. The sores are caused by the anti-nuclear antibodies (ANA) in my blood. Basically, it’s my immune system, attacking healthy skin from the inside. The Plaquenil quiets these antibodies.
Other symptoms have also abated to some extent. It’s clear the drug is helping me, tremendously. A month ago, I woke up every morning, three am. with my hands throbbing. Now I have a dull ache, if that.
Stress is really bad for anyone with the condition. It’s stressful to be pretty much 100% in charge of moving my family across the country, while I keep this site up and my business going. I also need to fix this house to sell, secure the loan, pack and whatever else needs to be done. I am handling this okay though.
I’m not symptom free by any stretch. I did have a day when I was away, I got in bed at 2 PM and did not get up, except to use the bathroom, until 8 AM the next day. I was so out of it, the big screen tv across from my bed was too challenging to navigate.
I watched, Dance Moms on my phone…and that’s all. That is absolutely all I did for eighteen hours I did not move. I was completely wiped. In fact, I told my husband if it did not clear, I would have no way to get to the airport. There is a real loss of control.
I don’t feel bad during these times. I don’t feel depressed. I surely don’t worry. It’s pretty weird. It might be the strong Saturn Neptune signature in my chart. I know the tide goes out, at times. I’m used to it. It will either come back…or my husband can come get me in a bucket. For some reason, either scenario seems okay. We’re committed in sickness and in health.
I think being busy has actually helped me not obsess about this or watch it too closely. I do the best I can. If I can’t do something, I quit doing it. It’s not the worst thing in the world.
Plaquenil may be the best thing in the world, though! I am lucky to have been diagnosed. Left unchecked, this may very well have killed me, pretty rapidly. Instead, it likely my symptoms will continue to clear and I’ll be left with what? A problem no one can see?
How utterly familiar!
I should be moved by the end of March, right as Uranus and Pluto clash for the last time. I’ve be living in a town that is not really a town, as far as I can tell. There is no post office, anyway.
That’s my grandfather, Henry, in the picture. These are my deep roots.
I said I was going to go into the woods, didn’t I? I meant it.
I am bringing the internet though. I may be a hermit. But it so, I’m a communicative version.